HomeNewsHave your say: Pharmac’s review of childhood cancer drug funding
HomeNewsHave your say: Pharmac’s review of childhood cancer drug funding

Have your say: Pharmac's review of childhood cancer drug funding

Find out how to make a submission to Pharmac in regards to their review of rule 8.1b of the Pharmaceutical Schedule.

Pharmac is currently going through a review in relation to the funding of paediatric cancer medicines in New Zealand. They are seeking feedback about rule 8.1b of the Pharmaceutical Schedule, a unique exception that means any medicine used to treat paediatric cancer is automatically funded without a Pharmac assessment.

We believe that rule 8.1b has played an important part in the provision of a world-class, equitable child oncology treatment pathway in Aotearoa/New Zealand and are extremely concerned that new medicines may not be funded if Pharmac make changes to the rule.

As part of Child Cancer Foundation’s mission to advance improvements to childhood cancer care and advocate for the best possible treatment options for Kiwi kids, our priority is to ensure that the families we support have their voices heard throughout this review process.

We will be collating feedback from our members and those we deliver services to and submitting this to Pharmac on behalf of children and families impacted by childhood cancer in New Zealand. We also encourage you to make your own submission and reach out to your local MP to help generate as much momentum around this issue as possible.

Please note that we have been granted a further extension on the submission timeframe. Consultation will now close at 9am, Monday 27 March 2023. All forms of submissions will be accepted, including video, audio or written. These can be emailed to consult@pharmac.govt.nz.

If you would like to know more about rule 8.1b and find out how you can take action, watch the recording below from our panel discussion on Monday 12 December, 2022.

You will hear from a panel of experts in different areas relating to this issue:

  • Dr Andy Wood and Dr Stephen Laughton, paediatric oncologists at the Starship Blood & Cancer Centre.
  • Kerri Morgan, mother of a child who has benefited from paediatric oncology medicine as a result of rule 8.1b.
  • Dr Jo Cribb, policy and advocacy expert.


Click below to watch the recording